Wednesday, 01 April 2015 20:10

Marleen's choices

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Lyme is een ziekte die tot diep in je lichaam binnendringt en werkelijk overal schade toebrengt. Dit leidt tot de meest heftige symptomen, die, om ze te doorstaan, mentale oerkracht en een onuitputtelijke levenswil vragen. 

Already published in Dutch and will be translated into English by a kind volunteer. 

Sunday, 29 March 2015 19:48

Joanne's story: neglect and hope

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Up to July 2014 I'd never heard of Lyme disease and co-infections, my journey began in 1990 unknowingly. 

Wednesday, 25 March 2015 10:30

Nina's cry for recognition

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This is what Nina wrote to us, when she uploaded her picture for our Facewall: "Because of Lyme I know how it is like to gasp for breath because of so much unbearable pain, to hear a constant screaming sound in my ears, to have spasms because of intestinal cramps, to have to crawl to the toilet - since walking was no longer an option."

Wednesday, 25 March 2015 10:17

How Isabelle infected her children with Lyme

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One day, as a child, I suddenly had a spectacular bite mark on my left leg. A big round red spot, swollen, painful... 

Tuesday, 24 March 2015 19:53

A bizarre fight against an inhumane system

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Adelien plainly stated that she considered killing herself an interview with a Dutch newspaper in May 2014. Unfortunately she is not the only one.  

Saturday, 21 March 2015 23:02

Jordan's story: Lyme infected the wrong gal

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My name is Jordan and I'm 21 years old. I was catapulted into the gruesome world of chronic Lyme disease in March of 2013. 

Saturday, 21 March 2015 12:34

Lyme Disease: a Death and Resurrection

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My life had never been particularly difficult. In fact, I often felt guilty that others appeared to be struggling so, while for the most part, I seemed to sail smoothly along. 

The diagnosis of any chronic illness comes with much you wish you didn't have to carry, and suffer with, for the rest of your life.

Sunday, 15 March 2015 16:20

Charlie never gives up

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Charlie Poortvliet (28) uses his skills in PR to attract attention to his fight with Lyme Disease. 

Sunday, 08 March 2015 13:07

Arlene: for me Lyme is a 'Blessing in Disguise'

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A year ago Arlène was diagnosed with Lyme Disease. Finally it was acknowledged that she had not imagined being ill after all. 

Saturday, 15 November 2014 01:00

Desi's verhaal: mijn leven werd een hel

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Om de afgelopen bijna 14 jaar af te sluiten heb ik mijn verhaal opgeschreven. Ik wil mijn verhaal en het onrecht gaan delen omdat ik hoop dat er meer bekendheid en erkenning gaat komen voor Lyme. 

Thursday, 11 September 2014 02:00

Adelien's gevecht met Lyme

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Leidt ziekte van Lyme tot euthanasie voor Hoogeveense? Hoe wreed de ziekte van Lyme kan zijn, blijkt uit het verhaal van de 31-jarige Hoogeveense Adelien Oortwijn.

Friday, 22 August 2014 02:00

Waarom Jac zijn eigen begrafenis annuleerde

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Wij kregen contact met een begrafenisondernemer, die blij vertelde dat zij een klant 'kwijt was'. Jac had namelijk zijn eigen euthenasie al besteld, omdat hij geen reden meer zag om door te leven met Lyme. Dit is zijn verhaal: waarom hij zijn eigen begrafenis annuleerde. 

Wednesday, 20 August 2014 02:00

Esther's story, updated: 'A zoo and a soup brain'

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Update by Esther in August 2014: 6 months ago I wrote on this blog. So I thought it would be a good time to write an update about how I'm doing/feeling now. A lot of people are asking me if I'm not healed yet or why it is taking so long.

Sunday, 29 June 2014 02:00

Roos' gevoel bij Lyme

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Deze noodkreet kregen wij van Roos, uit Groningen. Roos is nu 23 jaar en wil meer van haar leven. Een noodkreet recht in het hart.

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