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Saturday, 23 January 2016 16:21

The red threat (a conversation with Emyl)

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Dag Emyl, In de naam van al de mannen, vrouwen en kinderen, die jij probeert te kruisigen: gun ons wat respijt. Wie of wat ben jij eigenlijk?

Saturday, 23 January 2016 16:07

The red threat (after diagnose)

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Als ik ’s morgens mijn ogen open, zie ik het hangen, het zwaard van Damocles. En als ik ’s avonds mijn ogen sluit, heeft het er weer flink ingehakt. Want met zo’n diagnose van je eigen kind sta je op en ga je slapen.

Sunday, 17 January 2016 18:05

The red threat (before diagnose)

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Toen mijn dochter vijftien was, schreef onze huisarts in haar dossier: "CVS ???" Dat is nu 22 jaar geleden. 

Thursday, 07 January 2016 17:48

Do you really want to know?

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Je kan het niemand kwalijk nemen dat men niet weet, begrijpt of kent wat je voelt. Ik kan mezelf nauwelijks voorstellen hoe het meer dan vijf jaar geleden was, toen ik nog helemaal (voor mijn gevoel) gezond was. 

Wednesday, 06 January 2016 18:09

Tamara's cross

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In a response to a blog about the (a)social responses people with Lyme Disease are getting, a lady called Tamara connected to us on Facebook. Crying. This is what she wrote and it's her last chance to get help. Tamara is also the second in one week to report that Lyme causes breast cancer. 

Tuesday, 05 January 2016 17:45

Saar's discoveries 3: childhood dreams

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“Mama, wat wou je later worden, toen je klein was?” “Jouw mama”, zeg ik, en ik kijk hem liefdevol aan.

Monday, 04 January 2016 21:01

Elena's discoveries in Lyme Lands

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Elena is writing an irregular update about her discoveries in Lyme Lands. Her aunt offered to translate these in English. 

Saturday, 19 December 2015 17:20

Marion's story: from paralysed to health

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This is Marion's story, but it's only in Dutch. 

Monday, 14 December 2015 21:32

The 2011 Dutch patient-based Lyme research

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In 2009 the Dutch Federation for Lyme Patients started a national petition to influence Dutch national policies concerning information, testing and treatment of Lyme Disease. In 2011, this initiative was followed by a survey by the Ombudsman Foundation. Because both initiatives seem to be unknown to everyone outside of the Netherlands, we post this blog as a summary in English. 

Wednesday, 09 December 2015 16:08

Saar's discoveries 2: the game is on

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De Belgische Saar schreef ons in september 2015 hoe zij na 20 jaar ziek zijn ontdekte dat zij Lyme had. Zij verwoordde dit zo mooi dat wij haar hebben uitgenodigd om op de On Lyme blog een serie over haar ontdekkingen te schrijven, zowel terug als vooruit in de tijd. Dit deel heet 'the game is on'.

Sunday, 18 October 2015 16:42

Elma's story: Lyme in the Family

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The story of Elma and her husband, René, is a story of two caring parents who suddenly ended up in the labyrinth of Lyme. 

Sunday, 18 October 2015 16:39

Carla's story: the many faces of Lyme

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One week ago, Carla found out that she has Lyme disease. Before this discovery she thought that she had a number of horrible and incurable diseases. 

Sunday, 18 October 2015 16:37

Bregje's story: the swamp of Lyme

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Bregje’s story should break the spell that many people live under: the unconscious assumption that if someone falls ill, it is ”their own fault”. 

Tuesday, 06 October 2015 09:27

Rachel's story: cured after 21 years

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My name is Rachel Lewis; I am currently 29 years old and cured myself from Lyme Disease and Disassociative Identity Disorder after being sick for 21+ years.

Thursday, 17 September 2015 15:12

Sara's story: destiny reached

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48 uur geleden: “Bestemming bereikt”, zegt mevr. Tomtom met haar mooie Hollandse tongval. Ze klinkt anders dan anders. Plechtig bijna.

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