Parents with ill children seem to have regular trouble with the Dutch Child Protective Services. Over the last month there has been a lot of media coverage on this subject. Now the BVIKZ, the Dutch interest group for parents with chronically ill children, is collecting cases to investigate how often this happens. They specifically look into Lyme and the hidden misery of caring parents, who are accused of 'child abuse' or 'Munchhausen by Proxy'.
Until the age of eighteen, Liesbeth was a cheerful young lady who loved to be outside and amongst people. Then she fell ill and never recovered. Now it is 35 years later and only two years ago she has found the cause for all her complaints: Lyme and a number of co-infections. Until that time the only medical advice she received was to drink a daily Yakult. Instead of a right diagnosis now helping her, it actually got matters worse. This is Liesbeth’s story, in two parts.