The 2018 Report 'The Situation of the Human Rights Defenders of Lyme and Relapsing Fever Borreliosis Patients was submitted to Special Rapporteur Michel Forst and to Special Rapporteur Dr. Dainius Pūras of the United Nations in March 2018. This resulted in a meeting between United Nations Human Rights Council Special Rapporteur Forst and medical professionals, scientists, human rights experts and advocates on June 5, 2018 in Geneva, Switzerland.

Published in Blog
Tuesday, 15 August 2017 16:38

The ultimate Lyme test; Julia’s story

Two years ago the story of the young ill girl who was blessed by the Pope got international attention. She was dropped on a concrete floor as ’treatment', test results were hidden and the family was repeatedly told that she could NOT have Lyme Disease in the New York area. After the blessing indeed miracles started to happen: her Lyme blood test suddenly showed up positive, a specialist offered her free treatment and her health improved.

Then the insurance company declined coverage of her treatment costs and gave a fake address to file a complaint. To make matters even more bizarre, the CDC called to warn her father to not continue with her Lyme treatments. The story about the CDC, the games the insurance company played and the abuse with regard to the hospitals and doctors was never told before - out of fear of retaliation. As the proof of the pudding is always in the eating, we asked her father Enrico how Julia is doing now. 

Published in Blog

The following is largely excerpted from the June 27, 2017 article Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation, by Jenna Luche-Thayer. The link can be found below.

Published in Blog