Tuesday, 15 August 2017 16:38

The ultimate Lyme test; Julia’s story

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Two years ago the story of the young wheelchair bound girl who was blessed by the Pope got international attention. She was dropped on a concrete floor as ’treatment', test results were hidden and the family was repeatedly told that she could NOT have Lyme Disease in the New York area. After the blessing indeed miracles started to happen: her Lyme blood test suddenly showed up positive, a specialist offered her free treatment and her health improved.

Then the insurance company declined coverage of her treatment costs and gave a fake address to file a complaint. To make matters even more bizarre, the CDC called to warn her father to not continue with her Lyme treatments. The story about the CDC, the games the insurance company played and the abuse with regard to the hospitals and doctors was never told before - out of fear of retaliation. As the proof of the pudding is always in the eating, we asked her father Enrico how Julia is doing now. 

Dr. Kenneth Liegner has been on the forefront of the Lyme Wars for thirty years. In this fourth interview of the 'Teike takes on Lyme' series, he is asked about his extensive experience in the field of Lyme treatment and how the rise of 'managed care' has influenced choices of treatment options. 

Monday, 07 August 2017 20:21

New research sheds light on chronic Lyme

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Professor Ying Zhang's research is focused on resistance of bacteria and antibiotica. He has been working on Tuberculosis for years and since 2009 he has been researching Lyme Disease as well. His research and collaboration with other research groups are shedding new light on chronic Lyme.

Dr. Kim Lewis is specialised in persister cells and was mentioned by dr. Horowitz for his current ground breaking research. Could persister cells finally be the explanation why many Lyme symptoms remain after treatment? Dr. Lewis is professor in Microbiology at NorthEastern University in Boston. This is the second article in the research series ‘Teike takes on Lyme’. 

"Is there hope for Lyme patients?" One of the top Infectious Diseases doctors answers to this urgent question for many. This is the first publication of the 'Teike takes on Lyme' research project. 

"Is there hope for Lyme patients?" The 29 year old Dutchman Teike is currently researching whether there is hope for people with persistent health issues after a Lyme Borreliosis infection. As he explains in this short introduction video below, this question started with himself. He is still ill, seven years after a tick bite. 

Wednesday, 19 July 2017 11:53

Explaining human right violations around Lyme Disease

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In June 2017 thirteen representatives of a global consortium of medical doctors, scientists and human right experts reported on the current worldwide human rights violations of many Lyme Borrelia patients to the Special Rapporteur of the United Nations in Geneva. In this interview Jenna Luché-Thayer, founder of the Ad Hoc Committee which created the report 'Updating the ICD11 Borreliose codes' for the World Health Organisation and leader of the Geneva team, explains what we did, why we chose this approach and what it provides you with.

A report submitted to World Health Organization resulted in a meeting between a United Nations Human Rights Council Special Rapporteur and medical professionals, scientists, human rights experts and advocates on June 7, in Geneva, Switzerland. This meeting focused on the violations against persons living with borreliosis infections, such as relapsing fever and Lyme disease.

Friday, 26 May 2017 13:19

Learning as we go along: a reinfection

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Teike has persistent Lyme and has read every study available on the subject. Still he fell into the trap of misinformation and uncertainty that surrounds every aspect of this disease. He got reinfected by a tick bite last week and this is what you can learn from it. 

The BVIKZ, the Interest Group for Intensive Child Care, is doing an ongoing investigation into false claims of child neglect and abuse by the Dutch Child Protection Services. It has now compiled and researched 168 individual cases. Over thirty percent of these cases are about children with Lyme disease. 

Struck by a duck? Burned because your water skis caught on fire? Have a bizarre personal appearance? Fortunately, the World Health Organization has assigned over 68,000 diagnostic codes to cover these and thousands of other conditions. However, while getting struck by a duck or a spacecraft collision gets you care, Lyme Disease does not.  When your doctor checks off one of these diagnostic codes, insurance billing goes smoothly, your case is recorded, and data is available to guide medical and public health research and health policy, track mortality, and save health care dollars.

Monday, 06 March 2017 09:46

Anybody can become a new Lyme patient tomorrow

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Innatoss Laboratories has received nearly two million euro subsidy from the European Union to develop a better test for Lyme diagnostics together with 3 European partners. According to its director Anja Garritsen, anybody can become a new Lyme patient tomorrow. The risk of being infected by a tick bite is increasing and with the current state of technology and knowledge, odds are that the acute infection will not be found and will thus become chronic. We went to interview miss Garritsen. 

Due to an increase of attempts by the Dutch Child Protective Services to take the custody of children with Lyme away from their parents, top lawyer Richard Korver was willing to be interviewed on this complex subject. He is helping several Dutch parents to fight the accusations of 'child abuse' and 'Munchhausen by Proxy'. 

Wednesday, 14 December 2016 13:23

Father takes Dutch health insurance to court

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Marleen (32) werkte als psychiatrisch verpleegkundige, totdat zij enkele jaren geleden ineens steeds zieker werd. Zij vond de oorzaak van haar klachten en vond ook een arts die haar goed kon behandelen. Maar haar ziektekostenverzekeraar IZZ weigerde dit te vergoeden. Toen haar vader ontdekte hoeveel zieke mensen zoals zij in de verdrukking komen door oneigenlijke argumenten, startte hij een rechtszaak. Zijn insteek is om zowel vergoeding voor Marleen af te dwingen als jurisprudentie te creëren waar andere patiënten door geholpen zijn. 

Wednesday, 16 November 2016 15:42

This is the worst pain a parent can have

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Parents with ill children seem to have regular trouble with the Dutch Child Protective Services. Over the last month there has been a lot of media coverage on this subject. Now the BVIKZ, the Dutch interest group for parents with chronically ill children, is collecting cases to investigate how often this happens. They specifically look into Lyme and the hidden misery of caring parents, who are accused of 'child abuse' or 'Munchhausen by Proxy'.

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