Friday, 26 May 2017 13:19

Learning as we go along: a reinfection

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Teike has persistent Lyme and has read every study available on the subject. Still he fell into the trap of misinformation and uncertainty that surrounds every aspect of this disease. He got reinfected by a tick bite last week and this is what you can learn from it. 

The BVIKZ, the Interest Group for Intensive Child Care, is doing an ongoing investigation into false claims of child neglect and abuse by the Dutch Child Protection Services. It has now compiled and researched 168 individual cases. Over thirty percent of these cases are about children with Lyme disease. 

Struck by a duck? Burned because your water skis caught on fire? Have a bizarre personal appearance? Fortunately, the World Health Organization has assigned over 68,000 diagnostic codes to cover these and thousands of other conditions. However, while getting struck by a duck or a spacecraft collision gets you care, Lyme Disease does not.  When your doctor checks off one of these diagnostic codes, insurance billing goes smoothly, your case is recorded, and data is available to guide medical and public health research and health policy, track mortality, and save health care dollars.

Monday, 06 March 2017 09:46

Anybody can become a new Lyme patient tomorrow

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Innatoss Laboratories has received nearly two million euro subsidy from the European Union to develop a better test for Lyme diagnostics together with 3 European partners. According to its director Anja Garritsen, anybody can become a new Lyme patient tomorrow. The risk of being infected by a tick bite is increasing and with the current state of technology and knowledge, odds are that the acute infection will not be found and will thus become chronic. We went to interview miss Garritsen. 

Due to an increase of attempts by the Dutch Child Protective Services to take the custody of children with Lyme away from their parents, top lawyer Richard Korver was willing to be interviewed on this complex subject. He is helping several Dutch parents to fight the accusations of 'child abuse' and 'Munchhausen by Proxy'. 

Wednesday, 14 December 2016 13:23

Father takes Dutch health insurance to court

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Marleen (32) werkte als psychiatrisch verpleegkundige, totdat zij enkele jaren geleden ineens steeds zieker werd. Zij vond de oorzaak van haar klachten en vond ook een arts die haar goed kon behandelen. Maar haar ziektekostenverzekeraar IZZ weigerde dit te vergoeden. Toen haar vader ontdekte hoeveel zieke mensen zoals zij in de verdrukking komen door oneigenlijke argumenten, startte hij een rechtszaak. Zijn insteek is om zowel vergoeding voor Marleen af te dwingen als jurisprudentie te creëren waar andere patiënten door geholpen zijn. 

Wednesday, 16 November 2016 15:42

This is the worst pain a parent can have

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Parents with ill children seem to have regular trouble with the Dutch Child Protective Services. Over the last month there has been a lot of media coverage on this subject. Now the BVIKZ, the Dutch interest group for parents with chronically ill children, is collecting cases to investigate how often this happens. They specifically look into Lyme and the hidden misery of caring parents, who are accused of 'child abuse' or 'Munchhausen by Proxy'.

Tuesday, 08 November 2016 16:24

Liesbeth's story: from bad to worse (part 2)

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When Liesbeth found out after 35 years that Lyme had been the real cause of all her health problems, she assumed that her situation would improve. Although she was indeed glad with the diagnosis and the start of her treatments, as described in part 1 of her story, it also got her completely stuck. Because she did not have her job anymore, she ended up in the maze of disablitity benefits bureaucracy. That's what this second part of her story is about.  

Tuesday, 01 November 2016 16:41

Liesbeth's story: "Do I speak Chinese?"

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Until the age of eighteen, Liesbeth was a cheerful young lady who loved to be outside and amongst people. Then she fell ill and never recovered. Now it is 35 years later and only two years ago she has found the cause for all her complaints: Lyme and a number of co-infections. Until that time the only medical advice she received was to drink a daily Yakult. Instead of a right diagnosis now helping her, it actually got matters worse. This is Liesbeth’s story, in two parts. 

Friday, 16 September 2016 16:06

Teike's story: euthanasia at 28?

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Mijn verhaal begint op mijn veertiende. Sinds mijn achtste kom ik met mijn moeder en mijn zusje op naturisten-terreinen, waar wij naakt recreëren en kamperen. Vanaf jongs af aan is bloot lopen en leven een gewoonte waar wij intense verbinding met de natuur en een gevoel van vrijheid aan beleven. Tijdens een bezoek aan een van onze camping-vrienden in Friesland pik ik een teek op. 

Friday, 16 September 2016 15:29

Cornelius story: cured by natural remedies

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My name is Cornelius Tammik. I got Lyme at a young age and trusted the medical establishment for over a decade while my health deteriorated. I brought responsibility back to myself, educating myself and experiencing the power of natural healing. Now I have fully recovered and have been symptom free for the last three years. I look back at the experience, how my life has transformed, the dance of sickness and health, all the gained knowledge and I think 'what a crazy world we humans have created for ourselves'. 

Tuesday, 16 February 2016 10:29

The Lyme Whisperer; a Shamanistic journey (part 3)

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Deel drie van het drieluik "The Lyme Whisperer" met als titel "Miracles". Door Francisca. 

Tuesday, 16 February 2016 10:27

The Lyme Whisperer; a Shamanistic journey (part 2)

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Deel twee van het drieluik "De Lyme Whisperer" door Francisca: "Lyme wilde tegen mij praten, en leerde mij ernaar te luisteren."

Thursday, 11 February 2016 09:30

The Lyme Whisperer; a Shamanistic journey (part 1)

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Lyme als Shamanistische reis. Een drieluik van Francisca, speciaal geschreven voor de On Lyme Blog. 

"Er zijn slechts twee manieren zijn om je leven te leven: doen alsof niets een wonder is, en doen alsof alles een wonder is.' Albert Einstein

Saturday, 06 February 2016 21:31

My legs are not my legs

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This is part four of Saar's Travel Stories. This one is called My legs are not my legs. It is not translated in English yet. Volunteers are very welcome.

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