The report that is now on record with the United Nations also shows many different types of health human rights violations. These include how obstruction of access to treatment options from clinical practice guidelines that meet internationally accepted standards for guidelines violates the Availability, Accessibility, Acceptability, Quality (AAAQ) of Health Human Rights imperatives for "non-discriminatory" practices and medical ethics.

The record also shows how LB patients who have received clinical diagnosis are routinely denied care should laboratory tests fail to confirm their clinical diagnosis.

Many practices resulting from these codes are recognized as human rights violations. Furthermore, the ICD codes are linked to policies recommending practices that:

  • for many patients, prevent proper diagnosis and obstruct access to treatment options that meet internationally accepted standards
  • promotes discrimination based on illness manifestations
  • misapplies somatic diagnosis** to deny medical care
  • obstructs treatments based on illness manifestations
  • promotes discrimination based on financial status
  • supports attacks on human rights defenders —including medical practitioners, scientists and researchers who act on behalf of this vulnerable patient group
  • restricts information regarding treatment options that meet internationally accepted standards
  • routinely excludes key stakeholders —such as medical practitioners, researchers, patients and caretakers who are concerned with persistent and complicated cases of LB —from decision-making venues … making these stakeholders invisible to policy makers, economists and other practitioners and researchers
  • sick children under treatments that meet internationally accepted standards are forcibly removed from their parents —and there are many cases where such parents are falsely accused of poisoning their children or Munchausen by Proxy
  • alarming cases where euthanasia is encouraged over treatments that meet internationally accepted standards

**Medically Unexplained Symptoms or MUS has been repudiated by the APA and removed from the DSM.

To summarize, the science and medical knowledge regarding persistent and complicated LB —from hundreds of peer reviewed publications written by nationally and internationally recognized experts— has been routinely ignored or suppressed. The human rights defenders of this patient group are routinely threatened and punished for fulfilling their Hippocratic oath to this marginalized patient community.

Despite this institutionalized obstruction to care, tens of thousands of patients with persistent and complicated Lyme and relapsing fever borreliosis have regained quality of life, manage their illness and have become productive and contributing members of society because of successful extended treatments that meet internationally accepted standards for clinical guidelines.

The widespread discrimination experienced by Lyme and relapsing fever patients has been systemic and institutionalized across ICD codes, national health policies and medical and insurance systems. Altogether, these factors have led to gross human rights violations that are on record with the United Nations Human Rights Council’s Special Rapporteur for the right of everyone to the enjoyment of the highest attainable standard of physical and mental health.

WE ASK PROFESSIONALS TO ENDORSE OUR DECLARATION