On March 29, 2017 the WHO received the report 'Updating ICD11 Borreliosis Diagnostic Codes'. In this 108 page report recommendations were given to properly update the current ICD codes for Borreliosis and Relapsing Fever, according to the same model used for Syphilis.
Over 260 references were included to congenital Lyme, persistent Lyme and many conditions related to Lyme. Many of these conditions can be fatal. The different conditions, an abstract of the report and the recommendations made to the WHO are published on this website.
Contributing researcher Huib Kraaijeveld wrote a blogpost on his website about the meaning of this project, written in a language that everyone will be able to understand. It is called 'the difference between hell and hello'.
Authors are Jenna Luché-Thayer (USA), Holly Ahern (USA), Dominick DellaSala (USA), Sherrill Franklin (USA), Leona Gilbert (Finland), Richard Horowitz (USA), Kenneth Liegner (USA), Mualla McManus (Australia), Clement Meseko (Nigeria), Judith Miklossy (Switzerland), Natasha Rudenko (Czech Republic) and Astrid Stuckelberger (Switzerland).
Contributing researchers include Joseph Beaton (Canada), John Blakely (Canada), Phyllis Freeman (USA), Kunal Garg (Finland), Huib Kraaijeveld (The Netherlands), Vett Lloyd (Canada) and Leena Meriläinen (Finland). Cees Hamelink (The Netherlands) acted as an advisor, Jeff Levy (USA) provided editorial support and Angelica Johannson (Sweden) provided organizational support.