General information

On March 29, 2017 the WHO received the report 'Updating ICD11 Borreliosis Diagnostic Codes' made by the 'Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes'. In this 108 page report, recommendations were made to properly update the current outdated ICD codes for Borreliosis and Relapsing Fever, according to the same model used for Syphilis.

Over 260 references were included to congenital Lyme, persistent Lyme and many conditions related to Lyme. Many of these conditions can be fatal. The different conditions, an abstract of the report, the list of human rights violations that are now on record and the recommendations made to the WHO are published on this website. 

The significance of this report is clarified in two Press Releases: 'Lyme disease patients denied care and insurance coverage because of missing diagnostic codes' and 'Human Rights Violations of Lyme Disease Patients Under International Investigation'.

Authors are Jenna Luché-Thayer (USA), Holly Ahern (USA), Dominick DellaSala (USA), Sherrill Franklin (USA), Leona Gilbert (Finland), Richard Horowitz (USA), Kenneth Liegner (USA), Mualla McManus (Australia), Clement Meseko (Nigeria), Judith Miklossy (Switzerland), Natasha Rudenko (Czech Republic) and Astrid Stuckelberger (Switzerland).

Contributing researchers include Joseph Beaton (Canada), John Blakely (Canada), Phyllis Freeman (USA), Kunal Garg (Finland), Huib Kraaijeveld (The Netherlands), Vett Lloyd (Canada) and Leena Meriläinen (Finland). Cees Hamelink (The Netherlands) acted as an advisor, Jeff Levy (USA) provided editorial support and Angelica Johannson (Sweden) provided organizational support. 

Published with permission of Global Network on Institutional Discrimination and the Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes

To contact the principal author by email